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Disclosure: Links posted for products and services on this site may or may not contain affiliate links, including compensation (i.e., Amazon Associates links). (Typically, this means I may receive a few cents if you click a link. On average, I earn about $10 a year. I spend this money on more books or site maintenance.) Feel free to contact me if you have any questions about any links on the site. 

 

My Breast Cancer Survival List

PinkRibbonGirlA friend of mine was diagnosed with breast cancer. I wrote this list to help her and thought it might help others too. This is a list of tips that helped me get through the trying days of treatment and recovery.

• Always make sure you feel confident about your main care provider. If not, change to someone else immediately.

• When choosing a care facility, don’t fall for advertising you’ve seen. Check for reviews including their rate of cure. I never thought to look for reviews when choosing my facility. Reading them opened my eyes to many things.

• Take a spouse, relative, or friend with you to caregiving visits so that you always have someone who can offer support, help you remember what was said, what to ask, and to be an advocate for your care. Sometimes they see things going on with you that you don’t recognize and this can be helpful to your care providers as well as to you.

• Get a handy calendar (or use an electronic one) as you will have lots of dates to keep track of. When you are tired or suffer from brain fog (or chemo brain) it’s hard to remember where to be when. Your calendar can be your friend.

• Keep paper and pencil near all your phones (or carry some in your purse). When you are called with procedure dates or other information, write them down. Include the location and directions (if needed). Ask how you need to prepare for the procedure and/or anything you need to bring (if not already advised). Don’t hesitate to ask the caller to slow down repeat information so you can write everything down.

• Ask about free resources available to you. Sometimes you don’t know what to ask for until you need it. Our local area provided many free services such as massages, reiki treatments, support groups, even a crochet group. There were also free, educational classes. I received a beautiful, free wig.

Read more: My Breast Cancer Survival List

Where I Fit

Last night I had a dream I was in a packed restaurant. It seemed like every time I thought I had found a place to sit and order, something would happen and I would lose my seat. I couldn’t even get a seat with my mom and cousin.

I woke up feeling kind of dejected. It's weird to not really know where you belong or where you fit. It's crazy because I remember when my oldest was in middle school they told him he HAD to know what he was going to be when he grew up. How else would he know what courses to take? He became upset because he didn't have a clue. I kept telling him he didn't have to know. "You can make changes throughout your life,” I told him.

And here I am in my late fifties finding myself in the same position. Where do I fit? What should I be doing now? Where do I belong? I feel lonely, yet I am not alone. I have a good support team. I think it's more a bit of impatience, wanting to be wholly well and not, wanting to be free to be, and not. I know all these things take time, and I am getting there, I'm just not there yet.

I have a feeling that in a few months I will look back on this and laugh. I’ll have found whatever my “thing” is for this life’s era. I will be happy. I will feel fulfilled. I know this because that’s what happens in the void. It comes. It brings darkness, and then, like the eclipse, the light returns.

August 29

(The following was originally posted on my Carepages blog for family and friends during my treatment.)

As of August 29. . .

It’s been 10 weeks since my last chemo.

Over 7 weeks since my surgery.

My hair is about 1/4” long on the top of my head—a little shorter on the sides, but filling in nicely. (Yes it is dark! A few stray strands of gray—as before). My eye lashes are growing back and my eye brows are about 2/3 back. (YES!)

Nevertheless, I still have numbness in my fingers and toes, still have days of no energy, and grumble about a few other lingering side-effects. It’s to be expected, I suppose, but I am not settling and tell my body daily to "get better."

I have started exercising. . . with one-pound dumbbells. I do five or six lifts, then I’m done, but will keep working. Tim and I are talking about joining a gym for the winter where we can start slowly and build up our stamina. I have now walked around the block on two separate occasions. That is a huge step in the right direction.

Tim’s surgery went well. He’s at that “a little bit crabby” stage, which means he’s healing fine and frustrated for not being back to perfect. (I will be two weeks on Wednesday.) The new nerve stimulator is working fine and he is, so far, very happy with it. He has learned no golfing for 4 weeks. He's sad about that, but it is a small price to pay for years of relief. 

  1. Falsies and Some News
  2. Things That Make Us Laugh
  3. Surgery Update
  4. July 10
  5. Counting the Days
  6. Seven
  7. Miracle Waiting Room
  8. Through the Looking Glass
  9. The Alien
  10. Small Frustrations

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